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Gatherings for Multiple Sclerosis Patients and Aid for Caregivers

Gatherings for individuals living with Multiple Sclerosis and caregiver assistance networks

Gatherings and resources for individuals navigating Multiple Sclerosis, accompanied by aid for...
Gatherings and resources for individuals navigating Multiple Sclerosis, accompanied by aid for their caregivers

Gatherings for Multiple Sclerosis Patients and Aid for Caregivers

Multiple Sclerosis (MS) can be a challenging condition, but there are numerous online support groups and communities available to help individuals with MS and their caregivers navigate the journey. Here's a roundup of some of the most reputable resources:

  1. Multiple Sclerosis Association of America (MSAA): The MSAA offers an online community, My MSAA Community, where people with MS and their family members or caregivers can share experiences, advice, and receive peer support. 1
  2. National MS Society (NMSS): The NMSS provides online groups aimed at sharing common experiences, offering emotional support, and possibly catering to caregivers. You can find these groups on their website. 4
  3. MS Trust (UK): Based in the UK, this charity offers trusted information, the latest news, and resources for diagnosis and ongoing management of MS. While not a support group per se, they facilitate connection and support online. 5
  4. Berkshire MS Therapy Centre: This charity offers both in-person and online support, including therapies, counseling, and a carers lunch group for caregiver support. They provide a holistic approach to MS care. 3

In addition to these, the MS Foundation (MSF) offers the MS Focus Independent Support Group Network, which helps individuals find local independent MS support groups. 2

The NMSS also has a search tool for finding affiliated in-person MS support groups in specific areas. 6

Healthline offers a Facebook community called Living with Multiple Sclerosis, a supportive forum for people with MS to interact, post questions, and share tips. 7

Lastly, the Family Caregiver Alliance offers the CareNav program, providing support and resources for family caregivers of adults with any chronic condition, and the Caregiver Action Network has an online forum for caregivers of people with any health condition. 89

Whether you prefer in-person or online support, these resources provide accessible ways for people with MS and their caregivers to connect, find information, and receive emotional and practical support.

References:

[1] MSAA My MSAA Community: https://mymsaa.org/

[2] MS Focus Independent Support Group Network: https://www.msfocus.org/

[3] Berkshire MS Therapy Centre: https://www.berkshiremstherapycentre.org.uk/

[4] National MS Society: https://www.nmss.org/

[5] MS Trust (UK): https://www.mstrust.org.uk/

[6] NMSS Affiliated In-person MS Support Groups: https://www.nmss.org/

[7] Healthline Living with Multiple Sclerosis: https://www.healthline.com/community/multiple-sclerosis

[8] Family Caregiver Alliance CareNav: https://www.caregiver.org/caregiver-action-network-caregiver-action-network

[9] Caregiver Action Network Online Forum: https://www.caregiveraction.org/forums/

  1. The Science of Mental Health can benefit from studying the impact of therapy on caregivers of individuals with Multiple Sclerosis, given the emotional and practical challenges they face.
  2. Incorporating health-and-wellness practices, such as therapy and support groups, into one's routine can positively influence the mental health of both individuals with Multiple Sclerosis and their caregivers.

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